DCA Clinical Trial Petition (Canadian Version)

70 thoughts on “DCA Clinical Trial Petition (Canadian Version)”

  1. I have folicular lymphoma and plasmacytoma that is so far invading only my lymph nodes. I already underwent R-AVP chemo – 6 rounds. After the first chemo, a blood clot lodged in my right lung lobe. I survived and presently have to inject Fragmin daily. The chemo put the FL into remission, but left the plasmacytoma and lymph nodes unchanged. After another CT scan and the contrast material being used, I suffered Acute Kidney Failure that degraded my kidney function and left my haemoglobin level at 98-103. Then I underwent 20 rounds of radiation therapy that had no effect on my cancerous lymph nodes.
    According to internet health reports on different DCA therapies, it seems that this treatment promises a better outcome than the well researched treatments I was subjected to so far. Even if it would not help, I am sure that it would not do as much harm as I have experienced so far. According to a limited study on only 5 patients being treated by Dr. Michelaitis’s group, 4 out of 5 patients saw more or less of an improvement. Why is it impossible for a patient like me to learn how these patients were treated and why can I not get access to the pure pharma-grade DCA? I would like to take it for a few months while monitoring the level of paraprotein in my urine. At least I know that I will not cause myself as much trouble as the research proven treatments did.

  3. Have there been any cases where the cancer has been stag 4 metastatic adenocarcinoma (non-small cell)?

  4. Something jumps out at me right away. During my interview of Medicor Cancer Centre doctors, they treated a lung cancer patient with poor prognosis using a combination of Tarceva (a milder, newer cancer drug, FDA approved) and DCA.

    The patient was chemo resistant in general, however the combination of DCA and Tarceva was 95% effective for her. Dr. Khan used a test called a Chemo Fit Assay to test combinations of therapies on the patients cancer.

    For you to have similar results… your cancer will have to be a candidate for the Chemo Fit Assay such that your oncologist can determine which combinations of chemo therapy will be effective for you.

    Here is a link for the ChemoFit Assay http://act-inc.net/index.php?cID=92

    Here is a link to the relevant section of my interview:
    http://www.martincwiner.com/between-the-lines-episode-1-dca/ shuttle ahead to time index 53:00

    Best of luck to you and post back with any further questions.

  5. After learning too late of the possibilities for recovery from Stage IV cancer through alternative medicine practices I am left with a deep and burning anger directed toward our Public Health officials who have deliberately overlooked funding any of these promising treatments. Rather than informing the public of these medical advances they have denied the beneficial results obtained through initial testing and refuse to advance funds to support clinical trials. They have no valid excuse for this behavior.
    It is very obvious the medical fraternity in this country will happily consign their patients to an uncertain end by using orthodox methods of treatment that are unchanged for many years while totally ignoring alternative treatments that show much greater survival rates than are published today for conventional standard treatments.
    If there is anyone out there in Canada or the US who would like to organize some opposition to the current state of affairs please let me know now.
    I have lost a son to cancer, a mother to cancer, several friends as well. There was no effort on behalf of any of the health practitioners to even suggest anything but standard cancer treatments.
    Is it possible that these same doctors are ignorant of alternative treatments that might actually improve their patients’ chances for longer and better lives than just ‘palliative care’?

  7. I am totally new to this blogging business. I am changing to a pen name that will fit with my website. My alter-ego is Helpful Herb. My intention is to make comparisons between standard orthodox treatments and alternative/contemporary treatments.

    I appreciate your response to my cry for help. Thanks so much. I have just now deleted both entries because I thought no-one is interested.

    I can actually write a pretty good blog. I’m hoping to attract the attention of Facebook friends with appropriate you tube videos, if there are any out there.
    Some of what is taking place is shocking. Latest issue of Oprah’s monthly magazine of March 2011 contains 4 full page ads touting the wonderful benefits of this or that new medicine –complete with smiling patients or models– and in order to avoid lawsuits for difficulties experienced by users they print 2 to 3 full pages of side effects along with a qualifying statement saying the information is only a summary of side effects and that there are even more you should know about. Just ask your doctor or pharmacist to clue you in.
    As I see it the advertisers have completely protected themselves from lawsuits because they have, one way or another, mentioned all the hazards and the users utilize the medicine completely at their own risk.

    mcwiner, do you think there might be some way we could work together to publicize the DCA breakthrough?

    I am now going to review all your different assessments on Google.

    good luck,
    helpful herb

  8. Have you seen my youtube video at:
    http://www.martincwiner.com/dca/
    ?

    Have you noticed the f-like button (facebook-like)? Look for it in this post, you’ll find it. It’s a powerful tool inline with what you are suggesting. If you get people to click on it, it appears as a ‘liked’ link on their wall. It’s a way of virally drawing attention to our cause.

    I encourage you to try it out and if you feel it’s appropriate, pass it along to your mailing list.

    Let me know what you think of those two suggestions and we’ll continue our discussion.

  9. I’d just like you to know that I can start a page on facebook on behalf of you or I can at least assist you in doing so. To get the word out and try to make this viral seems like the next logical step to get the word out to the masses. Let me know what you think.

    Anthony

  10. Can we get a UK petition going and I will do my best to spread the word here 🙂 a facebook group would be a great idea. There are a few around already but none of them have been updated since 2010 so maybe starting a new one with up to date information would be good. Your website and medicor cancer centres combined have been the most useful to me for finding out information. Maybe if we raise awareness enough our governments might actually listen and get together to provide enough money for the full trials needed. Hope I can help xxx

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  15. I’ve posted the following response on that forum:

    You point out one reported case where DCA was used (perhaps misused) and use this to dismiss the value of DCA out of hand.

    Your ‘case study’ underscores the importance of a clinical study to determine safe dosages and treatment protocols. The whole point which you seem to negate is that DCA won’t be investigated properly because it is a non-patentable agent.

    Despite the lack of a full clinical study, there are doctors who have researched it in a clinical setting and come up with their own protocols. This is possible since DCA is approved for human use.

    Please review this interview:
    http://www.martincwiner.com/between-the-lines-episode-1-dca/
    and let me know what you think of it.

    For reference, when Salk cured polio, a batch of the vaccine was issued which contained active virus (ie it GAVE people polio). This led to stricter enforcement of procedure, it didn’t CANCEL the vaccine. We’d all have polio if it had.

  16. has anyone here heard of a treatment with betulinic acid it is apparently effective against a few types of cancer cells check this out: http://en.wikipedia.org/wiki/Betulinic_acid
    and the worse thing is it comes from a common herb here in canada called prunella vulgaris which also contains oleanolic acid and ursolic acid which a two other cancer inhibitors, delphinidin and rosmarinic acid which are anti-oxidants and some other usefull compounds look it up: http://en.wikipedia.org/wiki/Prunella_vulgaris

  17. I wish I could sign this, but I am in Serbia and wouldn’t have any value, right?
    By the way, here they are also doing researches, private lab… Seems DCA works.
    Good luck, I will forward this link to some of my business contacts.
    Regards to all of you,
    Natasa

  18. Hi Natasa, I’m also a researcher of sorts. I wouldn’t mind talking with the researchers. If you wouldn’t mind passing them my address: martin@martincwiner.com I’d appreciate it.

    Further, I think you gave me a good idea. Perhaps a petition to the World Health Organization of the United Nations?

  19. If getting DCA for the afflicted, regardless of wealth and station, is the ultimate goal, then petitioning a monolith like The Government, The President, The Prime Minister or Our Esteem Leader (even addressing them by their birth name), usually will eventually got lost in the abyss of their bounding bureaucracies.

    On the other hand, what about petitioning the numerous cancer related NGOs or cancer relate charity or cancer not for profit organisations?

    Petition them to petition their patrons or political representatives to petition these monoliths …

    After all, these organisation are of the cancer patients, for the cancer patients and mostly, by the cancer patients. Surly they, or their loves ones, would have the 1st hand appreciation of the value of a cancer cure or remedy (even if it is of little or no commercial returns) … wouldn’t they?

    Would that not be of any help to your quest?

  20. The various cancer charities take their lead from major oncologists and cancer researchers who largely have never even heard of DCA.

    I’m interested in approaching the NGO’s but being Canadian, I plead ignorance of their workings and who and how to reach out to them.

    I had yet another idea: asking the insurance companies to fund the research. They would all stand to gain.

    Thanks for the comment…MCW

  21. Insurance companies thrive by cutting edge applied mathematics and vigilant environmental scanning. If they didn’t pick this out then maybe their maths model say they shouldn’t; afterall insurance companies exist, 1st and foremost, to make money.

    With the cancer incident rate at 0.5~1%, high associated medical cost might make it easier to convince the other 99 people to pay a higher premium. On the other hand, the prospect of lower medical cost for the 0.5 or 1 person, may just jeopardise the overall income stream (make any sense?)

  22. The other options are that the insurance companies haven’t even heard of this treatment and/or the insurance company doesn’t want to take the risk. Ask any oncologist and you’ll find that few of them have heard of DCA. Next DCA is an experimental treatment and as such it’s not guaranteed to return a profit for the industry. Finally, what if company x decides to fund the research and it indeed succeeds? Then companies y,z etc would reap the benefit of company x’s expenditures in research. It’s a loss for company x in a sense.

  23. If the insurance companies haven’t heard or doesn’t want to take risk, then your leadership in petitioning the insurance companies should help shed some light, as to what is bugging them with regards to DCA.

    But being an experimental treatment itself was never a barrier to anyone or pharmaceutical companies/ startups wanting to do something – do a check in cancer trial websites and referencing over to Wikipedia, will find hits & misses abundant but money always still pours in….

    The real problem is really what you alluded to above; ie company Y,Z etc benefiting from company X expenditures because DCA cannot be patented (other than a weaker “how use” category) – a company is a company – created to make money. There is nothing wrong with that, except in this case, it is not able enabling the availability of the next Facebook or Ipad but someone’s mom or dad …

    Maybe the real question is “Should Market Forces play God”?

  24. On another thought, maybe instead of petitioning for a particular drug or remedies, you should also consider taking it a step further, eg getting a sort of “Public Domain Drug Act” like what the below site is saying “We are denied access to many great treatments because our government does not have a system for the approval of unpatentable drugs. Drugs in the public domain should be sponsored by public money” – and DCA is one such drug or remedy

    Ref : http://www.thedcasite.com/Public_domain_drug_act.html

  25. So there is a program called the “Orphan Drug Program”. This program exists in the United States. The program fast tracks and provides incentives to pharmeceutical companies to develop drugs for orphan diseases. Orphan diseases are those which have less than 200,000 patients.

    You’ll hear DCA referred to as an orphan drug (a drug for an orphan disease). The term is correct in that DCA is an orphan drug for the orphan disease called Congenital Lactic Acidosis. With DCA being called an orphan drug, many people ask why doesn’t it get funding under the orphan drug act? The answer is that DCA is not an orphan drug for Cancer because Cancer is not an orphan disease.

    What many DCA proponents support is an extension of the Orphan Drug Program to fund non patentable agents for non orphan diseases (Cancer).

    To my way of thinking there should be two streams to approval of new drugs, one public and one private. The current model is private. Non government corporations present proposals and fund trials etc etc. The public route should be for drugs which aren’t patentable and get public money.

  26. Yes, Orphan Drug Program is for Orphan disease, which when translated into the language of business means “small market, long payback (assuming the disease won’t disappear the next day, therefore is of low risk)”. Therefore the Act provides incentives, reduce taxation,market protection etc to re-balance this financial equation to encourage investment.

    But bottom line is still profit maximization or to make a good profit to the least (which is nothing wrong in that actually).

    The “Public Domain Act” or the like, is probably the attempt to give the entire medical discovery platform a “third leg” to stand on – ie when something has very little or no commercial value but possible huge impact on human well-being, then any organisation / entity that was created or elected purportedly by the people, for the people and of the people’s interest and well-being, should bravely go forth to do something about it … no ?

  27. does it not seem like a bugle in the distant has just sounded for a “bayonet charge” to go plug the one obvious gap in this cancer battlefield? so that all the other Jack Layton of Canada, indeed the world, current or future, might have a better chance to live and fight for another day? (rather than merely relying on “big gun” research or clinical trials that are mandated, motivated or initiated by the prospect of financial returns or patentability?)

  29. What if Steve has an even wider range of medicine, treatment and remedy?

    Not just those that came about only because it could or would make good money for someone.

    What if some of those treatments, medicine or discoveries that were deemed weak in product patent-ability or having lesser financial potential, did manage to see the light of day, to be “ officially” available to give the very people a fighting chance to live, because there was a “public domain drug act” or the like? (www.thedcasite.com/Public_domain_drug_act.html)

    Could Steve then, be standing in his turtleneck, still trying to “changing the world” tomorrow?

  30. Oddly Steve’s career was ruined by capitalism. My 1985 Macintosh computer has built in networking (which was plug and play) which didn’t really make it into PC’s until Windows XP (2001). Yet, despite Jobs’ 1985 Macintosh being the superior machine in 1985, historical advantage and Gates’ decision to allow cloning to capture a user base was the wiser capitalist decision. Capitalism favoured the cheaper PC’s of the day even though they offered less ease of use and had less features.

  31. Capitalism demands the best of every man—his rationality—and rewards him accordingly. It leaves every man free to choose the work he likes, to specialize in it, to trade his product for the products of others, and to go as far on the road of achievement as his ability and ambition will carry him. His success depends on the objective value of his work and on the rationality of those who recognize that value. When men are free to trade, with reason and reality as their only arbiter, when no man may use physical force to extort the consent of another, it is the best product and the best judgment that win in every field of human endeavor, and raise the standard of living—and of thought—ever higher for all those who take part in mankind’s productive activity.

    Capitalism is not the enemy, I’m afraid. Your Government is.

  32. You’re quoting Ayn Rand to me? Are you nuts?
    http://womenshistory.about.com/od/quotes/a/ayn_rand.htm

    If anything, the past few years have served to debunk Ayn Rand’s philosophies and those of her protoge Allan Greenspan.

    Capitalism is certainly better than its predecessors and its current competitors but is susceptible to corruption (specifically Crony Capitalism) in the same way that other economic systems are.

    It’s funny that you quote Ayn Rand though because our current situation is exactly what I’d expect to be the result if you put a bitter and miserable woman in charge of the planet.

  33. Salut martin,hi i just call the medicor cancer center in toronto at 416-227-0037,they told me the dca treatment are no longer available in there facility???but it still available on their website!!!So my dad had the result of bone cancer in vertebral column,and i know in montreal they dont know really much about the dca treatment,so the medicor center in toronto gave me Dr Bradfford in N.Y to get more info,do you know about that doctor?

    let me know im waiting whit enthusiasm ur answer.
    And i would like to know more about dca before giving ‘false’ hope to my dad

    Thanks very much
    Have a good day
    Michel

  34. Salut Michel,

    I just saw Dr. Khan on Sunday and I can assure you they are still doing DCA treatments at Medicor. Perhaps it was a miscommunication? In your other comment posted elsewhere on my website you mention that they no longer do the ‘test’? I think you’re referring to the Chemo Fit Assay which was never done by Medicor, it was offered through Medicor, but always done in New York.

  35. I would like everyone to sign the petition so the government will anti up the money for human trails, this is a cancer drug that has great promise and needs to be investigated. Nora

  36. What we see here is the government sucking up to the big Pharma. This is nothing new but if we don’t act, this unacceptable status quo will continue.

  37. i have hurthle cell neoplasm with capsular penetration and vascular invasion, histologic type, oncocytic follicular carcinoma, lymph vascular invasion. Can DCA help me? Please i need to know urgently

  38. DCA has shown ‘broad spectrum’ action against many different types of cancers. I can’t answer your specific question because no specific data exists that I’m aware of. Just the same, if you’d like to try DCA and speak with a licensed MD who will guide you and treat you, please contact http://www.medicorcancer.com/ .

    Best of luck and health to you.

  39. I posted a link to this petition on facebook and this is a reply from a friend of mine: You know where he should take this for funding, Kickstarter. If a game company can get 2 million in backing from the general public I think people may contribute to cure cancer. http://www.kickstarter.com/

  41. Thank you for your comment.

    I know of no university or research center looking into the effects of DCA on the 4 isoenzymes of PDK. In fact, there is hardly any research into DCA going on at the moment. The first paper you mention: http://www.cancerletters.info/article/S0304-3835%2810%2900251-X/abstract refers to research done at the University of Guelph. I’ve actually written a response to that research because it was picked up by the media: http://www.martincwiner.com/journalists-deal-a-blow-to-dca/ . My explanation in short, is that the core of a tumor is very hypoxic (without oxygen). Attempts to ‘wake up’ the mitochondria (which is what DCA does) in an environment where there is no oxygen is bound to be ineffective given that the mitochondria need oxygen. My criticism of this research is that it doesn’t test how DCA will work with an actual tumor. At the surface of a dense tumor there is bound to be more oxygen than in the middle. Perhaps then DCA works it’s way in from the outside. I think we all agree, DCA needs to be tested in vivo and urgently so.

    Your point regarding the isoenzymes however is well taken. True, further research into the presence and interactions of DCA with these isoenzymes would appear warranted. Just the same, all of this research is in vitro. Scientists are guessing as to what would happen with DCA in vivo in all the cancer cell lines mentioned. The urgent need here is for human trials.

  42. I sincerely hope that with God in our hearts a cure for Cancer can be found. Should this be true that there may be a possible cure for this deadly disease and we can’t access it because of government kick backs from Pharmacutical companies, then I certainly hope that you, our government that we believed in, have broad shoulders to carry the weight of millions of families who have lost loved ones to Cancer. Remember that Cancer knows no difference and it could be you left to die with Cancer.

    God help us all if there is a cure for Cancer and we are not taking full advantage of it.

  43. I’m not sure about government kick backs or any other such ‘overt’ conspiracy, but I’ll tell you this. If a chemical isn’t patentable, the drug companies have no interest in it. If the drug companies have no interest in it, the Cancer charities, which rely on Pharmaceutical companies and Universities to decide which research to fund, our charity doesn’t go to un-patentable treatments. (Universities also need to be aware of the patent-ability of their research in order to secure grants from Pharmaceutical companies and the government).

    Basically, the system is sick and thus, so are we.

  44. My brother is living proof of the DCA working! He had stage 3-4 lung cancer and today is completely cancer free in his lungs!! He still has a bit of cancer in his bones and a small tumor which will soon be gone! WE NEED THIS DCA ON THE MARKET!!

  45. Would DCA be effective in a hormonal cancer, 100% estrogen receptive, that has metastasized? have there been studies on this?

  46. If you wouldn’t mind, perhaps you can contact me: martin@martincwiner.com and we can write up the case study for publishing on this blog. The more information, the more case studies we establish, the harder it will be to deny the efficacy.

  47. DCA is a broad spectrum anti-cancer agent. There are no specific studies that I’m aware of in hormonal cancers. Regrettably, there are few studies whatsoever. In fact, the point of the petition is to get funding for research because the big Pharmaceutical companies have no interest in pursuing DCA.

  48. DCA worked for my daughter. She was diagnosed with late stage cervical cancer and they gave her no hope. Her tumour was so large and they couldn’t operate. She decided on her own to try DCA where she purchased it on-line. . . . it worked! When she had her next ct scan, it showed the tumour had shrunk quite considerably. Doctors do not say much because they are really there to push drugs, cut, burn & poison and if that doesn’t work, they just don’t seem to be interested and expect you to go home and accept the fact that you are going to die. It’s all about the money. My daughter goes back in June to have a follow-up, so she will find out then if the tumour is still shrinking or she needs to start taking more DCA.

  50. Hi,i would like to know,on what website have you purchase the DCA,and what is the suggested use???whitch brand???,i have stage 3 cervical glioma,they removed 2/3 of the tumor,i still have some part in my brain,they told me that i dont have hope to live,because it will growth back very fast.

    Please can u guys let me know.
    I live in montreal

  52. Thanks for ur help Martin,only medicor can do that? no 1 in montreal area?,even if i can go to medicor,do they have some fees for the care and medication.

    have u ever heard about liquid shark cartilage frozen.

    Merci Martin bonne soirée.

  53. Medicor will be able to treat you remotely. You won’t have to come to Toronto. I’m not familiar with their fee structures especially since they can’t tap OHIP (Ontario Health Insurance) in your case for consultations etc.

    Bonne chance, bonne sante et bonne soir…

  54. Sorry Martin i dont have cervical tumor,its brain tumor stage 3(glioblastone),they removed 2/3 june 21,so u think if i call medicor on toronto they could help me whit that type of cancer?

    i know its a hard one,i already talk about it to my oncologist,he told me that they have no-scientifique proof of that,so i dont know if he will be ‘glad’ to helping me whit that in University montreal hospital?can he decided to not helping me whit that?

    Thanks Martin
    Michel Quesnel

  55. Well the good news is that most of the testing (and promising results) was done on glioblastoma. Medicor will work with your oncologist should your oncologist be open to working with them.

  56. As a 14 yr survivor of a very deadly type of cancer (esphageal/stomach cancer with only a 3% survival rate), I feel it is imperative that clinical trials of DCA be conducted immediately by ANYONE. The drastic surgery, chemo & radiation left me with permanent digestive issues, liver damage, and dumping syndrome causing hypoglycemic episodes daily, but I am here!

    I am forwarding this site to everyone I know, asking for them to support this cause before they or a loved one is faced with a devastating diagnosis of cancer. If DCA is a viable cure, it would be criminal not to make it available to cancer patients.

  59. Hi Martin,

    I am a student at the University of the Fraser Valley in Abbotsford BC. I am doing a presentation in my communications class and would like to have all the students in my class, and will pass this on to as many students as I can on Campus. Do you have a hard copy of the Petition for the the Prime Minister to fund research into the anti-cancer properties of DCA (Dichloroacetate)?

    I believe that one person can make a huge difference:)

    Thank you for your time and efforts!
    Nadia

  61. Am I able to get DCA through my Naturopath in BC. Can I get it from your organization? I have signed your on-line petition. I am a lung cancer patient with liver mets and have been put on second line chemo. First line was not successful. I need this. Please reply if this is available anywhere and how to obtain it.

    Thank you,
    Cecelia

  63. If there is a chance this could be a viable treatment then it should be researched further. By holding back any possibility of a cure is unethical and immoral as far as I am concerned

  64. Just found your website and am wondering if there are any comments more current than “about a year ago”. Thank you. I’ve signed your petition and continue to research after losing my grandson to cancer 2 years ago. I’m not much of a fan of our “medicine for $” system. I believe that there are many alternative treatments that deserve serious attention.

  65. I’ve been frustrated for around 2 years so I haven’t updated it much. Just the same, what would you like to know? There have been advances.

  66. I have NETS on my liver and am on sandostatin LAR and have had chemo embolizations. I would like to combine treatments with DSA treatments is this possible?

  67. The horror of a cancer diagnosis is then eclipsed with the confusion of treatments. Big hospitals, big pharma, lobbyists, self serving medical institutions and fund raising agencies should not get in the way of our government funding anything that shows promise and lowers health care costs.
    My company has worked with big pharma and the Canadian Government relative to helping First Nations during a severe swine flu outbreak. We offered tangible solutions at no cost to First Nations or the Government. We were told that our help was not required by Lenore Aklaqak, and then she sent body bags to the First Nations Groups. Losing Faith

  68. Keep up the great work, big pharma as far as I’m concerned are a bunch of murderers if they
    keep supressing information reguarding DCA as a cure for cancer.

  69. I am a Breast Cancer survivor who experienced many side effects from TAMOXIFEN which was prescribe for me, hot flashes, thickening uterine lining and hormonal changes. 5 Years free now Dr wants me to try another hormonal pill which h as more side effects than positive. Please , our government needs to look after our people and fund DCA for cancer treatment and keep the people of Canada Healthy and strong .

  70. I live near Edmonton, Alberta where the initial study of DCA was conducted at the U of A. When I lost my wife to cancer in 2000, I began to research for a cure for cancer. I am of the opinion that your research holds the most promise. I appreciate being kept in “the loop” as your knowledge and experience progresses. Sincerely, Lyle Paulson, Leduc, AB.

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